I woke up yesterday (Sunday) starting to write a post about a week that just came to an end as a Tri-S group of students left on Saturday following a strong, positive week of service during their Spring Break. Unexpectedly, Jenny received a phone call at 7:30, with the quick, wailing explanation that baby Mirari passed away.
We are shocked. This is a baby that our families have been involved with since her birth when they found out she has a rare genetic disease and requires extreme dietary measures to stay alive. The group that visited last week delivered the next load of milk formula for her (allowing us to skip the 'shipping costs'), so she had plenty of it to last for more than a month. We've always known the risk as she grows older, and the statistics that she's not likely to reach adulthood, but she seemed so healthy, so beautiful just a mere one week ago.
Please pray for this family to be released of their anger and to be comforted and held lovingly. This mother had previously lost 3 babies, unknowingly to this same genetic disease (MSUD), then they were finally able to diagnose Mirari to help prolong her life. She would have been 2 years old in July.
So our day yesterday was filled with grieving and a trip to Parramos, to show our love and support to the family.
We are shocked. This is a baby that our families have been involved with since her birth when they found out she has a rare genetic disease and requires extreme dietary measures to stay alive. The group that visited last week delivered the next load of milk formula for her (allowing us to skip the 'shipping costs'), so she had plenty of it to last for more than a month. We've always known the risk as she grows older, and the statistics that she's not likely to reach adulthood, but she seemed so healthy, so beautiful just a mere one week ago.
So our day yesterday was filled with grieving and a trip to Parramos, to show our love and support to the family.
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